In Sickness and Health

Today, my husband Tom and I celebrate our wedding anniversary. Twenty-five years ago we made promises to each other pledging to honor and cherish one another come what may. And boy did it, sickness and health, riches and poverty, good times and bad; we’ve seen it all. Thinking about everything we’ve experienced through the years made me laugh and wonder if the vows we had taken should have been a little more down to earth, something like this:

“I take thee, as my lawfully wedded spouse and promise to love you through sleepless nights, and bouts with the stomach flu. While choosing curtains and hosting holiday dinners with my extended family. I will abide in faith, remaining respectfully silent while buying a home and making DIY repairs. I will find a way to cherish your opinion even during an election year.”

Of course when I looked up nuptial vows, I did not find anything as pragmatic as the aforementioned. However, what I did find made me tear up, because I realized what I had promised to accept in marriage, I could not accept in myself.

How many of us can stand before a mirror and say,

“I take you to be no other than yourself. Loving what I know of you, trusting what I do not yet know.

I take you, with all your faults and strengths; and I will offer you help when you are in need.

I will respect you and have faith in your love for me through all our years and in all that life may bring, in sickness and in health.”

I know that it is especially difficult for those of us with chronic illnesses to love ourselves, let alone accept that others can, and do love us despite our lingering issues. But, Dear Ones, if we promise to love ourselves the way we would vow to love our partner, we will be taking a step in the right direction!

Angels Among Us

Angels. The Bible tells us they are created beings who have a definite hierarchy and hold very important jobs in heaven. Some believe that we are issued winged guardians on the day of our birth, provided to guide and protect us throughout our lives; others say when our loved ones pass on they become angels, still others speculate that angels are actually aliens. There are many beliefs about these beings, and despite our varied speculations, I feel that we can all concur that there are times in our lives when we encounter someone who breeches the realm of coincidence; someone who reiterates, almost verbatim, our most private meditations and makes us wonder if we have just had an encounter with an angel incarnate.

My husband Tom and I were sitting in the lab waiting for my name to be called for blood work when a gregarious man of color entered the lab and greeted the receptionist, in French.

“Comment allez-vous?”  (How are you all?)

The receptionist smiled politely, asked him to sign in and have a seat, which he did one chair down from Tom and me. I tried to ask his name with my limited knowledge of French and realized immediately that I used the incorrect verbiage; but in retrospect, perhaps not.

“Qui est-ce que c’est?”  (Who is it?)

The man did not answer me but began to tell us how he had learned French in high school while living in West Africa. I heard his accent now and had to lean over Tom to hear as he exclaimed what a glorious day it was, a day to be grateful for all things. 

“Just to open your eyes is a gift. Each day we may face challenges, but God didn’t say it would be a bed of roses. He said he would bear with us, help us. If God, who created me, is helping me how can I do better than that?”  The hair on my arms was standing up and I was listening intently.

I am facing a new challenge. I was in the lab for additional blood work after my ANA (anti-nuclear antibody) was positive, an indication of an autoimmune disease, specifically, Systemic Lupus Erythematosus. I was having a difficult time praying about this, words it seemed, escaped me. The most I could utter (after an expletive) was “Seriously?!” and “Just whatever!”

“We need to do more than just attend church, we must read the Bible, allow it to become part of us or we become a part of the world and sin.”

Since moving to North Carolina five months ago, Tom and I have been attending Sunday services at a local church faithfully and have participated in other church events; but I have not been diligent about reading the scriptures and have been wondering if just attending church was enough to sustain me. Goose flesh crawled up my spine, I could see Tom was getting uncomfortable too, but this man had my attention.

He must have noticed Tom fidgeting. “I am sorry to sound preachy, but I must share!”His face lit into a huge smile.

In an attempt to change the subject, Tom asked if he had family. “I have a wife and 2 children; a son who is 26 living in Baltimore, doing very well for himself and a 16 year old daughter.”  My spine was tingling now! Tom and I were both born and raised in Baltimore; huh, what a coincidence? 

Then he pulled out his cell phone. “My daughter and my wife like Facebook. I sent this to them today.” he began reading his post to us. “It is of the Lord’s mercies that we are not consumed, because his compassions, fail not. They are new every morning; great is thy faithfulness.” (Lamentations 3:22-23)

I was almost in tears. You see, that very morning as I was getting ready for my appointment, I was quietly signing the old hymn, Great is they Faithfulness, written by Thomas Chisholm and inspired by the scripture our new friend had just shared with us. 

Again our friend reiterated, “I must share because you do not know who you will meet and how they might need encouragement… “

I stopped him in mid-sentence, “I know why you had to share. You were sent here, to this place today, just for me, for us.”

Now HE was leaning in across the open chair, his smile broad and eyes shimmering.“Tell me!” he said with enthusiasm.

“I’m here for blood work because I have… “

“Some health challenges.” Tom interrupted. At that, the phlebotomist called my name. We rose, and the man with us. “Janet Hartlove”, I extended my hand introducing myself.

“I am called Antony.”  He shook my hand. “God bless you!”  He may have stated his last name, but I don’t recall, and I’m not sure that it mattered. The message he had delivered was received loud and clear. No matter what the blood work revealed, I was going to be ok, because God is faithful, each and every day!

Great is Thy faithfulness, O God my Father

There is no shadow of turning with Thee

Thou changest not, Thy compassions, they fail not

As Thou hast been, Thou forever will be…

Great is Thy faithfulness

Great is Thy faithfulness

Morning by morning new mercies I see

All I have needed Thy hand hath provided

Great is Thy faithfulness, Lord, unto me…

Imperfect Perfection

Sometimes inspiration can be found in the oddest of places, and some days, at the most inconvenient of times.

The Vernal Equinox is quickly approaching and I am sitting in my craft room making flowers for a friend’s very special occasion. I pour over photo references for color, shape and size. In a word, I want these flowers to be perfect.

It’s nap time at the Double H Cat Ranch and all is quiet, a rare opportunity for productivity, however, something is nagging at me, something my very wise husband Tom said to me when I asked him his opinion on how to make these flowers stand out, how to make them realistic.

“Don’t make them perfect. In nature, things aren’t perfect.”

So simple, so profound, and yet complex in its execution. In essence, Tom was telling that I should take my perfectly shaped flower petals, the ones that I spent hours cutting out and shading; tear them, cut into them, and crumble them to make them look real.

Ludicrous!

Genius!

As I did this I watched the petals came alive in beauty and that’s when my productivity came to a screeching halt, the muse of creative writing thumped me on the back of the head and that’s when I heard a little voice screech say…

“Where is your pen, where is the paper, TAKE NOTES!”

I am not prone to easy distraction, I do not have ADD; although, I have become quiet adept at multitasking as physical limitations dictate. Quickly abondoning one activity in favor of another when my body ever so delicately SCREAMS at me to stop. However, when the muse of creative writing pops her lovely head in demanding a few minutes hours of my spare time, I drop everything thing and run to my tablet like a kitty who just heard the crunchy bowl being filled!

This my friends, was one of those times. In mid-cutting, the nap-time clock ticking loudly indicating that my window of peaceful opportunity was closing soon, I stopped flower production to share with you what I learned amid crepe paper, hot glue and flower tape.

Why in the name of all that is beautiful would I expect myself to be perfect when nature isn’t?

Flowers and trees are seiged by disease; insect infestations mar their leaves and petals. Tree trunks are bent and twisted from the storms they have bravely weathered. And yet, they stand, with their beautiful faces looking up into the radiance of the sun drinking in its warmth. Trusting in nature’s timing, the coming Spring that brings more light to each day, showers to cleanse and nourish; a rebirth of imperfection in its most perfect form.

Dear Ones, take a step in the right direction. Follow nature’s example, embrace your beauty, even in what society may deem imperfection.

My love to you all!

Musical Chairs

michelle nicole photography

I live my life in increments. Twenty minutes here, thirty minutes there. Flitting about from one activity to another with all the frenetic energy of a room full of children surrounding a single chair waiting for the music to stop, only to pop up again with a squeal at the sound of a new melody.

I do not have ADD, or ADHD; although at times, I’m sure it appears as such. I have chronic pain stemming from nerve damage and many, many surgeries to stabilize my spine from birth defects that affect my ability to sit or stand for prolonged periods of time. There are however, days, where one would never know my constant struggle to maintain some semblance of normalcy. On the surface, I appear to be your average middle aged wife, mother, grandmother, and stay at home cat mom. A deeper look though, would reveal a string of incomplete projects.

Journals filled with unfinished blog posts and a book manuscript, waiting for brain fog to lift. Boxes of patterns and fabric in need of hours at the cutting table and sewing machine, anticipating the day they are transformed into fashion statements or beautiful costumes. Flower petals cut from paper awaiting for permission to “bloom” and be placed into unique bouquets. Tasks abandoned as a matter of priority, like chairs pulled aside with each new round of music. Every day, a new melody, every day the need to assess my level of pain and energy to prioritize what I need to do verses what I want to do.

Recently, I apologized to my husband for a nap, something becoming more of a routine than a thing of spontaneity. He was very kind and understanding stating that he knows I’m “not normal”. I bristled at his sweet statement, but deep inside, I know he is right. That day, I chose my “chair” carefully; I attend a fitness class to stretch and strengthen muscles. It took every bit of energy I had and once the music stopped, I found the nearest BarcaLounger, plopping into it, welcoming as many cats as would fit to join me!

It has become quite a process; but through patient practice I am achieving balance, allowing myself the freedom to choose which chair I want and learning the cues that my music is about to stop.

The Road to Discovery

michelle nicole photography

 

Hello friends. It is I, the long-lost author of The Write Direction, she who has been, for some months, directionless. My apologies for the HUGE gap in communication. These past few months that I have wandered in wordless abandon were not without incident or powerful life lessons worthy of sharing. Many times, I had thoughts of this blog and felt pangs of remorse for not remaining communicative; but my thoughts were so fleeting I could barely see them as they passed let alone catch them in my paper ‘blogger-fly net’. I wondered if my time for sharing had come to an abrupt end when, quite unexpectedly, it happened. I awoke one morning and my paper ‘net’ was FULL to overflowing with words. Beautiful, rich and poignant, they cascaded out spilling into my journal and onto my keyboard. It was as the Heavens opened up and rained down gloriously on a hot summer’s day leaving puddles for me to splash in. Of course, I pulled off my sneakers and ran right in, despite mountains of empty boxes and packing tape that called to me from disheveled rooms. That right folks, we are moving; nearly 500 miles south and it has been this new adventure that allowed me to discover what happened to my words!

Tom, our three Maine Coon cats and I will be going to a small town just on the outskirts of Winston-Salem, North Carolina. In keeping with the small town living we have grown to love over the last ten years in Pennsylvania, we will be living near Main Street dotted with an eclectic mix of shops. A place where time seems to move slower and the tea is a bit sweeter. It should come to you as no surprise that as moving day approaches and we dive deeper into purging and packing, I have been too busy for the laisse-faire existence of our Maine Coon house mates or anything in the creative realm. I have not made jam, I have not baked, save for the gluten free, dairy free, soy free bread we eat for breakfast each morning; I have not sewn a single stitch and I have not touched one sheet of card stock. So, it was just about when the first onslaught of verbal rain hit me, that I realized…

My creativity is like a one lane road

Yup, it appears that my brain has assimilated to country living as well, preferring to meander down winding, tree lined back roads than travel multi-lane interstates! Simply put, I cannot do two things at once. When I am in the throes of a sewing or paper project where creative ideas are using the cerebral HOV lane, my words are content to wait on the one lane bridge for the mama duck and her ducklings to slowly pass to the other side. Can anyone out there testify? Let me hear you say AMEN!

So, with this new understanding of how my brain works, I feel relieved knowing that I have not lost my ability to express creativity through written word and I understand to an even greater degree how important balance is in my life. Until we meet again on the WWW, may you all continue to travel in the right direction, be it on a bucolic back road or a major interstate.

 

 

Food for Thought

michelle nicole photography

 

I was laying on my yoga mat listening to soft music and the soothing voice of our instructor Kate as she guided us through a time of relaxation after a Les Mills Body Flow class. My knees are bent and turned in to take the pressure off my low back. We are told to breathe in deeply setting our intention for the day; to focus on the positive things in our lives and let go of the negative. This is my favorite part of the class; it feels like a reward for all the hard work I pushed my body to do. I like to take this class at least once a week to help stretch my muscles, work on balance, to keep vertical and ambulating as long as I can. I am 13 years past the prognosis of wheel chair bound by 40, and while most days the pain is minimal, there are some where I wonder if I can bend to tie my shoes, let alone move into exalted warrior or triangle. It’s these days that I struggle to maintain a sunny disposition. I do a lot of self-talk, sometimes aloud, encouraging myself to get moving; telling myself that I will feel better for having gone to a class.

Kate says she has a special reading she wants to share; the music softly continues, the room is fragrant from a towel dotted with essential oils another class member shares, the combination is relaxing, almost ethereal as the reading begins…

An old Cherokee woman is teaching her grandson about life. “A fight is going on inside me,” she said to the boy.
“It is a terrible fight and it is between two wolves. One is evil – she is anger, envy, sorrow, regret, greed, arrogance, self-pity, guilt, resentment, inferiority, lies, false pride, superiority, and ego.” She continued, “The other is good – she is joy, peace, love, hope, serenity, humility, kindness, benevolence, empathy, generosity, truth, compassion, and faith. The same fight is going on inside you – and inside every other person, too.”
The grandson thought about it for a minute and then asked his grandmother, “Which wolf will win?”
The old Cherokee woman simply replied, “The one you feed.”

It was beautiful, poignant; I wipe the tears from my cheeks, grateful that the room is dark. We begin to awaken our bodies and slowly sit up ending the class in thanks; I feel refreshed, renewed. Today the good wolf won… again. She wins easily most days, but that wasn’t always the case. When you are a twenty-something it’s hard to hear that you may “only have a handful of good days per month”, a veritable buffet for the evil wolf to feed on. Chronic pain and illnesses are like the evil wolf, they thrive on despair, frustration and hopelessness. I have met many, many patients who are feeding the wrong wolf; their outward display of their inner choice gave me the strength to choose; what about you,
which wolf do you feed?

 

Star Gazing

 

michelle nicole photography

Star Gazing

“When you wish upon a star
Makes no difference who you are
Anything your heart desires
Will come to you”

I remember the day I wished for my heart’s desire clearly, although it was over 25 years ago. I was exhausted and frustrated from trying to work full time and care for three young children when I uttered the seemingly benign words…

I wish…

I wasn’t laying in a field of clover on a dreamy moonlit night, staring up at the heavens searching for a shooting star to wish upon, I was sitting at the kitchen counter in my parent’s home sipping coffee and whining talking to my mother.
“Mom, I need a break. I’m so tired. I wish I didn’t have to work, I don’t like to send the kids to day care, all I want to do is be home with them.”
What I wanted was sympathy and a little coddling; what I received was sage words spoken from a wise woman.

“Watch what you pray for child.”

My mother said this without malice, but her words stung like the tears welling in my eyes. I was hyper- sensitive, feeling over worked, under paid and unappreciated. Little did I know that at that very moment, my stars were aligning; the countdown had begun and production of my heart’s desire had commenced. To my knowledge, no genies had been present nor had a magic lamp been rubbed when I uttered those two little words; yet somehow my insignificant comment had made it to the Wish Fulfillment Center landing squarely upon the desk of Fate; who was no doubt, a new hire.

“If your heart is in your dream
No request is too extreme
When you wish upon a star
As dreamers do”

My whiny weekend rant long forgotten, I forged on at my job as a payroll administrator day after day, trying to maintain a healthy balance between work, motherhood and social life. I was four months into a relationship and looking forward to beginning a new chapter in this area of my life with the most wonderful man I had ever met. I awoke each morning with joyous anticipation, excited for new adventures. Adventure: an expression my buddy Noah Webster defines as, “an exciting or very unusual experience”. Little did I know that exciting and unusual would turn out to be a bit of an understatement so it would seem, as my genie, Fate, had a different understanding of the concept. Apparently Fate, obviously encouraged by her colleagues, used the highly scientific process called Chance when placed before the virtual whiteboard containing adventurous wish scenario selections. I am convinced this procedure was akin to spinning a blind folded child on a tilt-a-whirl then placing a stick in her hand as she teeters below a dangling piñata.

“Fate is kind
She brings to those who love
The sweet fulfillment of
their secret longing”

Much to my surprise, no more than two weeks after I had expressed my secret longing, it came to fruition. Technically, my wish had been granted, but apparently there was a breakdown in communication at the fulfillment center, as in, this isn’t what I was expecting. I was indeed provided an opportunity to stay home with my children, but my sabbatical from employment was presented to me in the form of an extensive spinal surgery. My parting gift? Shinny titanium pieces, 60 of them, all neatly wrapped in disability papers and tied with a Demerol bow.

“Like a bolt out of the blue
Fate steps in and sees you through
When you wish upon a star
Your dreams come true”*

Perhaps Fate and I could have dialogue a little when she received my request; maybe teased out a few if/then scenarios or even ask me that all important question, “Are you sure this is your heart’s desire?” before those words ever came out of my mouth. But, alas, this is not how wishes work my friends; as so often our wishes often are born from malcontent. Staring out at life through our ISO solar viewers, the grass on the other side of the fence is infinitely greener, the cows on the pasture are thinner, in better shape and produce sweeter, more nutritious milk, the farms are newer and more extravagant; far better than anything on our run down, god-forsaken parcel of dirt. However, if we just take a moment to sit down with Fate and see our lives from her perspective, I imagine we would promptly write her a thank you note. For what you may ask, a life of chronic pain and disability? Oh yes, this and much more…
That guy I was seeing, the most wonderful man I had ever met? Well, even though I tried to push him away to spare him a life of heartache with a disabled woman; he wouldn’t leave because “he loved me for more than my legs”, providing the unconditional love I had always dreamed of. He became my husband and is a wonderful, compassionate, partner; the experiences we’ve endured together through 17 surgeries have brought us to a level of trust and intimacy I pray every couple can know. I was able to be home with my children at a time when ‘latch key kids’ were en vogue, even adding another to our brood. They are loving, generous adults with great respect for the disabled and have blessed us with 4 grandchildren. As I journeyed through these years of pain and illness I have had the opportunity to learn much about the human body and how to cope with chronic health issues; information that I gladly offer to others I meet who journey this path as well. I have had the exciting experience of self-publishing the journal that I kept through the implantation of a Dorsal Column Stimulator to share with chronic pain patients that are candidates to help prepare them for the experience. Oh, and of course I have had the distinct privilege of sharing my continued anecdotes with all of you here on the WWW via The Write Direction.

Fast forward 26 years…  Fate and I have found a way to live harmoniously. I awake each morning grateful to be; be alive, be walking, and I have promised to abstain from uttering rash wishes for anything, because you see, I have found the secret longing of my heart; contentment in any situation!

*Leigh Harline and Ned Washington for Walt Disney

In Lieu of Flowers

My suitcase was packed except for a few toiletries and what I would be wearing on the plane in the morning; leaving Arizona would be bittersweet. I had traveled to our daughter’s home to help her after acute pain in her abdomen led to emergency surgery. Her husband, children and even her cats had welcomed me with open arms from the moment I walked through the door, with everyday life flowing smoothly around and including me as if I had always been there, living with them.

Now my visit was coming to an end. The doctor had released our daughter from care to resume normal activities and my assistance was no longer needed. My help may not have been needed, but the family demonstrated with loving words and gestures that my presence was wanted, making the departure that much more difficult. Even the kitty seemed to be saying, Don’t leave Mayam, when he brought me a parting gift…

… the tail of a lizard, recently detached and still writhing.

I thanked Hunter, so aptly named; profusely and with as much gratitude as one can muster while carrying a still warm, severed lizard tail back outside. With Hunter in tow, I tried to find the owner of said tail to return it, but having come up short, (pun intended), I laid the gift on a paver stone and once again thanked my benefactor.

Back inside the house, I sat down at the kitchen table and started to cry. I really missed my husband and our three fur babies; I wanted to get back home to them, but I didn’t want to leave my daughter’s home and her wonderful family, especially since I didn’t know when we would be able to see each other again. Then a very random thought occurred to me…

I wonder if this is what it’s like when we approach that time in life when we need to depart.

I allowed my mind to wander to that place where conversations on the topic are avoided or held in very hushed tones and only when the discussion is absolutely necessary. Once again, I was there at the bedside of my family member who was about to depart on their one-way trip to Glory, a posture I have been in too many times. That place where we hold frail hands, whisper loving sentiments and all the things we had been meaning to say but never did. A place where grief and guilt collide fusing into anguished prayers for more time together. I wondered if my loved ones had bittersweet feelings about departing, reluctant to leave their kith and kin on this plane, but excited to see those that had gone on to the next plane years before and were deeply missed.

Hunter sauntered inside from the patio, sans lizard tail, and plopped down at my feet; this time offering his soft white belly as a gift. As I pet him I thought about how we so often express our love and sympathy with the traditional arrangement or spray of flowers; beautiful upon receipt but whose fairness fades with time. Of course, like most customs started centuries ago that we continue to practice, the original purpose was established for practicality; simply put, fragrant flowers mask the odor of decomposition. Of course with innovation and the advancement of technology over the years, we no longer need floral arrangements, and it has become acceptable to request donations to organizations near and dear to the deceased in lieu of flowers, which led me to wonder…

… why NOT lizard tails?

Does the gift really matter, be it flowers, a memorial donation or a casserole; isn’t the message the same?

You mean a lot to me, I’m thinking of you, I hurt too, but I’m here for you!

Can you imagine how corporate America would have capitalized on the marketing campaigns for giving gifts of lizard tails instead of flowers? There would most likely be Lizard Growing Farms and Lizard Shops; cute adobe buildings housing warm rooms artfully decorated with rocks displaying various varieties of lizard’s tails to choose for your loved one. There would be silk and plastic lizard tails for those who preferred not to destroy Mother Nature’s handy work. Advertising firms would create catchy slogans like:

Getting sick Skinks! Wish them well with a beautiful tails.

February 14th is Valentine’s Day, Iguana wait to the last minute? Gecko going, quantities limited.

Designs by Liz

It’s been three months since I left Arizona and now I am in Florida at the behest of my sister-in-law. My brother had a heart attack, required by-pass surgery and I am here to be of assistance. As we sit in their living room, a lizard skittered by sending my brother’s wife flying off the couch to catch it and put it outside. He had been in her room the previous night, no doubt to let her know that he was there to comfort her and tuck her in. I smiled at the coincidence and knew right then and there how I wanted my obituary to read when the good Lord sees fit to call me home:

In Lieu of Flowers, Please Bring Lizard Tails

Stuck

 

The glue refused to come out of the tiny hole in the bottle tip, even though I had soaked it in hot water. I poked with every pointy ended object I could find in my craft room to no avail, the tip was clogged and nothing was flowing through it…

just like my brain these last few months.

I was frustrated, so I put my paper craft aside for another day and searched for a different creative outlet. That’s exactly what I did with this blog; when encouraging words were congealed causing an obstruction of thought somewhere between my head and my pen, I put it aside and focused my creativity in another direction while I waited for a smooth flow of thought. However, another day turned into another week, which turned into another month and then an entire SEASON. This wasn’t writer’s block; in the heart of me were words, lots of them. I had started several posts but unfortunately they were not much more than scattered thoughts that lacked continuity. That’s what chronic pain does to me, it binds my thoughts, and frustrates me.

So, what’s a creative girl to do when her brain and her glue bottle are stuck?

she soaks them!

Water, it does the body good, inside and out! The warmth of the hot tub, water aerobics, a warm shower; are all beneficial. Water between the temperatures of 92-100 degrees Fahrenheit stimulates blood flow and helps to lower cortisol levels which reduces stress.

 … she hydrates them!

Studies have indicated that even mild dehydration can cause a decrease in cognitive function. The Institute of Medicine recommends men drink 3 liters of water per day (104oz) and women 2.2 liters (72oz) per day.

… she gives it a rest!

Frequently, I get caught in a vicious cycle; pain precludes sleep and sleeplessness impairs cognitive function. Even Moi’, your infamous Lady of Perpetual Motion, shuts the craft room door, powers down the I-Pad and strives for 9 hours of sleep per night snuggling in with her Honey, her Maine Coons and chenille blanket!

… she supplements!

I work hard to balance my extra-curricular activities, but I’m not always as good at balancing my diet. Proper nutrition is imperative for optimal cognitive function. More often than not, I am ashamed to admit, when I am in pain I will opt for my favorite comfort foods (think small end of the pyramid) rather than something that is nutritionally beneficial, so I supplement my diet with vitamins and minerals specifically recommended by my Rheumatologist.

I am happy to report that after much ‘encouragement’, I was able to get the blob of glue out of tip of the bottle and have resumed work on my paper crafts. Likewise, patience and perseverance have paid off! The brain fog that I had been experiencing has lifted and I am eager to resume work on previously unfinished posts for this blog. Until next time friends, when we meet while journeying in the right direction, a bientot!

 

 

 

 

El Mejor Regalo

Foto de Clark & Company

Fueron cinco días antes de Navidad

Y en toda la casa,

Nuestros tres gatos estaban dispersos, cazando un ratón de catnip.

Corbin persiguió a sus hermanas lejos y cerca,

Sin saber que en unos días

PATAS SANDY

Pronto estaría aquí!

Sus medias estaban colgadas en algún lugar alto de una pared,

¡Y para evitar las cuentas no deseadas del veterinario, no tenemos ningún árbol en absoluto!

Como me siento con mi pluma tratando de escribir, no una galleta se hornea ni se envuelven envueltos,

Mientras que las visiones del sueño acenan, “Ven acá un sueño, toma una siesta!”

Entonces, de repente, desde el segundo piso, se levantó tal alarido,

¡Yo quería levantarme, pero no tenía energía para ver qué era el asunto!

Para entre el tiempo frío y la actividad adicional de la alegría del día de fiesta,

Un Fibromyalgia Flare estaba muy cerca!

“Hay cosas que hacer, la Navidad estará aquí en ningún momento!”,

Me levanto de mi silla con un gemido y un gemido,

¡En Corbin, en Cleo, en Lady Jade!

Hay cajas para envolver, las comidas deben hacerse!

¡Vaya la fatiga, vaya Cerebro Mushy, POR FAVOR PARE EL DOLOR!

¡Los invitados están pronto para llamar, ahora se alejan, se alejan, DASH AWAY ALL! “

Así comienza otra fiesta con Dolor Crónico y Fibromialgia. Mientras me siento en medio de montones de papel de envolver, telas de colores y arcos, me pregunté cómo en el mundo iba a estar presente para todas las próximas festividades. Era justo entonces que recibí la foto de arriba de mi hermano Rick, un Santa de carne y hueso, que me ayudó a entender que los mejores regalos que podemos dar no vienen envueltos en paquetes bonitos. Su presencia junto a la cama de un paciente en el piso de cáncer pediátrico me recordó que hay muchos que sufren de enfermedades crónicas que pueden no ser capaces de asistir a fiestas o incluso ser el hogar de regalos abiertos apilados bajo un árbol bellamente decorado. A través de su amor y compasión Rick me demostró vívidamente que el mejor regalo que tengo que dar es el don de mí mismo.

Después de muchas lágrimas y mucha contemplación, les presento las siguientes estrategias que me parecieron que funcionarán para mí, y comparto la esperanza de que quizá otros puedan recoger algunas cosas útiles para futuras celebraciones, ya que en este sexto día de 2017, Rápido lejos el viejo año ha pasado ‘, fa fa la la la la, la la LA!

Estoy eligiendo estar PRESENTE en el momento. En un día y la edad cuando la tecnología nos permite vivir en vivo, video chat y enviar fotos de todo al toque de un dedo, estoy eligiendo para disfrutar el tiempo que tenemos con la familia y amigos, así que no pierdas un momento mientras intenta Para capturarlo.

Me permitiré PRESENTAR a otros la oportunidad de ayudarme. No soy la Mujer Maravilla o incluso un facsímil razonable de ello, a pesar de todas mis piezas Cyborg y partes. Soy un mero mortal con dolor crónico y no es razonable para mí esperar que yo pueda hacer todo yo mismo. Yo pediré humildemente, y recibiré ayuda de otros para que yo pueda disfrutar más plenamente de las celebraciones a mano.

Voy a ser UNA PRESENCIA en la habitación. No soy muy bueno acerca de estar sentado y participar en la conversación social. No es que me sienta incómodo en una multitud o se comunique con otros, es que me siento incómodo sentado durante largos períodos de tiempo; Y la razón, si necesito hacer estallar para arriba debido a una articulación del dolor, yo podría también hacer algo mientras que estoy para arriba. En retrospectiva, he encontrado esto muy grosero a nuestros huéspedes que vinieron a visitar con nosotros, no sólo Tom.

Acepto que en mi PRESENTE FORMA, hay mucho sobre la vida que está fuera de mi control. Sin embargo, hay; Algunas cosas que puedo controlar, como la cantidad de fatiga y estrés que experimento. Amigos; Es fácil quedar atrapado en el merchandising de ocasiones especiales, gastando tiempo y energía preciosa para encontrar ese regalo perfecto y / o crear una comida deliciosa. He encontrado una manera de equilibrar mejor mi descanso y actividad es mediante la compra de regalos especiales durante todo el año en lugar de en uno o dos días largos y agotadores. También he encontrado útil para preparar platos o productos horneados antes de las celebraciones y congelarlos. Por último, y lo más difícil para mí para aceptar, es el intercambio o renuncia (GASP!) El trabajo de acogida. Sé que el comercio en mi delantal de una invitación sería el aliviador de la tensión definitiva y el tiempo libre para mí para ayudar a mi hermano, Santa, repartir regalos!

¿Alguna vez pensó en darle el regalo a otros? Hay muchas organizaciones como la que mi hermano, Santa, ofrece su tiempo. Hope Matters se encuentra en Fort Walton Beach, FL y trabaja para “crear un cambio de paradigma en la forma en que niños y adultos experimentan viajes dolorosos”. * Si se trata de cáncer, Alzheimer, dolor crónico u otras enfermedades crónicas y debilitantes, la gente necesita el regalo De su presencia en sus vidas. ¿No estás seguro por dónde empezar? Tome un paso en la dirección correcta, póngase en contacto con su cámara de comercio local o echa un vistazo a la búsqueda de voluntarios ubicada en: https://www.volunteermatch.org/search

* Maryann Makekau, Hope Matters